Citizen science health tools

The number of citizen science health and biology projects has been growing in the last few years due to a confluence of factors. Some of these include the plummeting cost of DNA sequencing, the availability of bioinformatics and other web-based data interpretation tools, the possibility of ordering direct-to-consumer blood tests, and having community DIYbio labs for experimentation, education, and support. DIYgenomics has developed a number of boilerplate tools to help in the design and conduct of citizen science health projects:

Study design and organization

• Study design template

Legal/ethics

• Sample informed consent form

Finance

• Study budget template

Recruitment and marketing

• Study flyers: multiple studies, aging study, vitamin deficiency study
• Conference poster
• Participant recruiting plan (per Genomera)
  

Examining tool complexity

Tools and the science findings they enable evolve in lock-step. Many tools have been quietly transforming into complex entities of their own over the last several years. Exemplar contemporary tools on the landscape include many forms of the microscope, mass spectrometer, chromatograph, flow cytometer, and telescope.

The complex tools of today involve a hardware component together with many layers of software
for operating, enumerating and analyzing. The analytics software layer has become critical as mathematical modeling, simulation, automation, statistical computation and informatics are expected features. For example, the new biology extends traditional enumeration and experimentation with the additional steps of mathematical modeling and software simulation, and building test biological machines in the lab.

The increasing complexity of tools means that it is not possible to just wait for hardware speedups anymore, software is the weakest link (open source collaboration helps but only modestly), mathematical advances have been figuring most prominently and the cultural divide between hard science professionals and computer science, mathematics and statistical experts inhibits progress.

Industry Roadmapping with Prediction Markets

Prediction markets are already known as liquid trading sites for real money and reputation and are starting to be deployed in corporate settings such as at Google, Microsoft, HP and Pfizer for crowd sourced knowledge of product launch dates, sales forecasts and other corporate events. Information markets are now even web 2.0-ified so that you can easily create your own prediction question with Inkling Markets or build a full market with open source software from Zocalo.

Prediction markets could be useful in many other areas such as industry roadmapping where disbursed information could be aggregated in meaningful ways. Industry roadmapping, which is setting future milestones and actions in an industry as agreed upon by the industry participants, is perhaps best known in the semiconductor industry. Other industries such as nanotech (via the Foresight Institute) and virtual worlds (via the Metaverse Roadmap) have been in the early stages of implementing roadmapping.

Prediction market roadmappers could create events and enter their view of the importance and timing of these events which are then rolled into a composite easily viewed on a time graph.

Roadmapping would become continuous instead of discrete by allowing participants (anonymous or not) to remain in real-time linkage with the project and constantly update any new information to be reflected immediately in the overall outlook.

Open-source sexuality. Compersion. Relationships 2.0

The role and function of sex and relationships has already been shifting considerably with modern life (birth control, economic empowerment of women, skyrocketing divorce rates, etc.) and could now be taking an order of magnitude shift as human life spans are increasing and technology and life accelerate.

Now that humans live 80-120 years and possibly forever, it only makes sense that relationships would evolve from the one currently acceptable model, "life-long" monogamy and the antiquated tool of political control, matrimony. What does it mean now anyway, until uploading or suspension do us part?

Physical intimacy, emotional intimacy and companionship can (and in reality do) come from many interpersonal and other sources, both physical world and digital and could be better fulfilled with greater realization of their distinctness. Polyamory, led by the tech-innovative Pacific Northwest, is an interesting alternative model, where the level of communication and personal emotional management required is exemplar. There appears to be an important self-evolution to move beyond jealousy and reap the relationship rewards of polyamory and compersion.

Higher levels of self-actualization may be possible by separating and expanding ideas of physical intimacy, emotional intimacy and companionship which have been traditionally bounded by scarcity, control and artificiality.

The future of sexuality further changes in all aspects of culture when traditional physical reproduction becomes obsolete. Sexuality could be more about authentic agency instead of bartering, obligation, power and status.

Universal voices, Message separated from Medium, Ubiquitous choice

Doug Rushkoff at the 2004 PopTech conference makes several great points related to some of the ongoing themes discussed in this blog, listen to the talk here.

Theme: Increasing democratization of the world
Rushkoff cites the European Renaissance as where media (e.g.; books) became distributable and everyone could access it and have opinions, it was the birth of the individual; the Renaissance human tech culture is currently going through is that everyone can now be an author. Some examples are via personal websites, blogs, building our own software (open source), applications (free APIs), games and new online mini-worlds/experiences. It is interesting to think about how collective consciousness models and other tools may evolve for orchestrating and making accessible not overwhelming all of these voices (15-20 million blogs as of Jan. 2005 and growing exponentially). They'll likely (self?)organize into like streams but should they?

Theme: The medium is the message - the tool is the innovation
Rushkoff cautions that the sexiness of the medium heavily influences the message, for example, because TV was new and personal and invasive in the home, Dan Rather could end newscasts saying "...And that's the way it is" and everyone would believe him. We don't believe the newscasters any more as full arbiters of the situation they are discussing. As critical thinkers, we need to separate the message from the medium and evaluate the merits of the message on its own. The message may be much less powerful and overwhelming than the medium, especially with a lot of new media likely on the way - holographic, 3-D, brain-implanted, etc. How are blogs as a medium influencing the message?

Theme: Shift away from market-centric life structure and value systems
Another interesting point Rushkoff makes is that yes, we are awash with choice, which is good, but it is only in a market context. He uses the example of if you are in love with someone, the only current societally accepted way to act on that is to be married. We don't yet have true choice in lifestyle and many other areas. Take work, for example, it is rare that it's not structured as location and time specific, when being efficiency specific makes much more sense. In the tech world is an example of a successful efficiency-based transition: search is going from statistics-based to relevancy-based. Hopefully new attention on the presence of choice in some arenas and not in others will allow it to be drawn into where it is not.